According to the NICE guidelines, people with dementia should have access to research opportunities at all stages.
According to the NICE guidelines, people with dementia should have access to research opportunities at all stages. It is important to provide information that is accessible about research studies and takes into account dementia-related cognitive or communication needs. Also, it is vital that support is available for those who are unable to participate in the study. It is important to consider how decisions about participation are made for people with dementia who are unable or unable to make these decisions.
People with diminished capacity for consenting to participate in research are often approached by their relatives and close friends. We wanted to understand how relatives make decisions about research for someone with dementia. This was part of a research project that explored the participation of people with impaired decision-making capacities in research. This is a new area of research. We conducted the DECISION Study in order to understand how families in the UK decide about research.
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Our study was published in Age and Ageing. We interviewed relatives of someone with limited capacity to consent and those who were involved in deciding whether or not they should participate in research studies. Family members hadn't discussed future preferences regarding research with their loved one and didn't know what they wanted. However, family members tried to make decisions that would be authentic to the person and reflect the values they held dear. It was difficult for some family members to make this decision, and many felt an emotional and decisional burden. Some families also described the difficulties of discussing the topic of dementia research with relatives, when they were unable to gain insight into their condition. This sometimes led to denials of their dementia diagnosis.
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Families that we spoke with believed that family members could make decisions about the future for someone living with dementia. Family members may feel less impact from supported decision-making. It will make their decisions more informed, representative of the wishes and preferences and allow them to continue participating in research in the later stages.
Research has shown that families are not provided with enough information regarding research studies to help them make decisions. Our research also revealed that social workers and health care professionals who work with individuals with impaired capacity are not well-versed in the legal frameworks that govern their participation in research. This could affect their ability to recruit participants with limited capacity or provide inadequate support for family members. We have developed a tool to help both the family members who are asked to make a decision on research as well as the practitioners and clinicians who approach them. The decision aid (the tool) will supplement the study-specific information. We will pilot the decision support tool in the future before testing it to determine if it supports family members to make informed choices about research for other people.
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Our study also recommends that people with dementia or similar conditions have early conversations about future research (as much as care preferences) and that health and social service professionals receive more training to involve populations who are unable to consent in research, and provide opportunities for them to be included in research at all stages.
dailyhealthstudy
For women's health, tips for heart, mind, and body - https://www.mpolska24.pl/blog/for-womens-health-tips-for-heart-mind-and-body
If you want to avoid problems such as strokes and heart disease, there is an easy way.
Get more fruits and vegetables.
Whole grains are better than refined ones. Brown rice is better than white. Switch to whole-wheat pasta
Consider lean proteins such as poultry, fish and beans.
Reduce your intake of processed foods, sugar, salt, saturated fat, and other unhealthy food.
Flexibility is key to eating well, according to Joyce Meng, MD assistant professor at UConn Health's Pat and Jim Calhoun Cardiology Center. You can follow a strict diet plan if you prefer. It's okay if you don't like following a strict diet plan.
Tricia Montgomery (52), founder of K9 Fit Club knows firsthand the benefits of a healthy diet and lifestyle. Her favorite things are eating healthy food and making small, frequent meals. She says, "I don’t deny myself anything." "I still enjoy dessert, key lime pie, yum!" -- I love frozen gummy bears and moderation is the key.
Get regular checkups. Your doctor will keep track of your medical history so that you can stay healthy. If you are at high risk of osteoporosis (a condition that weakens bones), your doctor may recommend more vitamin D and calcium.
You may be recommended by your doctor to have screening tests done to monitor your health and detect conditions before they become serious.
Be open to communication. Meng said, "If you have any questions, ask your doctor." "Ensure you are satisfied with the information." Talk to your doctor if you have concerns about any medication or procedure.
Reduce Stress
It can be very detrimental to your health. It is impossible to avoid it all, but there are ways you can reduce the effects. Do not take on too many responsibilities. Set limits for yourself and others. It is okay to say no.
To relieve stress, try:
Deep breathing
Meditation
Yoga
Massage
Exercise
Healthy eating
Talking to a friend or family member.
Develop healthy habits
You can prevent problems from coming your way tomorrow if you make the right decisions today.
Brush your teeth twice daily and floss each day.
Don't smoke.
Limit your alcohol. Limit your alcohol intake to 1 drink per day.
Take your medication exactly as prescribed by your doctor.
Get better sleep. Try to sleep for at least 8 hours. Talk to your doctor if you are having trouble sleeping.
Keep out of direct sunlight between 10 a.m. and 3 p.m.
Wear your seatbelt.
Meng suggests that you take time each day to invest in your own health.
Montgomery was able to see the benefits. Montgomery says that she has overcome health issues, is happy, and has a positive outlook. She says that her life has been forever transformed.
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